March is National Multiple Sclerosis Awareness Month ~ by Grace Augustine

March is National Multiple Sclerosis Awareness month. For the

photo courtesy of the NMSS

past few years on social media I have been posting articles and information relating to this ever increasing autoimmune disease. March 8-14 is National MS Awareness Week.

MS is an autoimmune disease that affects the central nervous system. People ask all the time if I’m contagious, how I was stricken with it, and if they are susceptible. The answers: no, it is not a disease spread person to person, I have no idea how I contracted it, and anyone at any time can have MS symptoms.

It is a pro at destroying lives by destroying the host who has the disease. By this I mean it is an individual thing…no two people have the exact same symptoms. It isn’t viral or bacterial. It is our OWN cells attacking our bodies.

In short, we have T-cells and B-cells, both lymphocyte immune

photo courtesy of Teachmephysiology

cells, part of our white blood cells, that originate in our bone marrow. T-cells are responsible for protecting our bodies against any pathogen, including cancer. B-cells are responsible for producing antibodies.

In a person with MS, our bodies produce B and T cells that turn rogue. When this happens, the myelin coating of our nerves are eaten away…the once good fighter cells now become destructive…hence how MS gets its name—MULTIPLE SCARRING. The brain matter and spinal cord are prime places for these rogue cells to feast and break the connection from the command center (our brain) to the nerves throughout our bodies.

Personally, I have lesions at C6 and L6 and multiple white and gray matter lesions in my brain. Location of the lesions are integral in what part of the body is affected by the MS.

MRI’s show the damage to spinal cords and white and gray brain matter, but sometimes they do not correlate to the symptoms of the patient. (Click HERE  to read further.)

Several years ago, I wrote a book SO, YOU HAVE MS. NOW

WHAT? because I was tired of misinformation being given to newly diagnosed patients. 

There is no cure for this autoimmune disorder, that is why it is important to donate to research that can find a cause and hopefully stamp out MS. You can also participate in many other events that are held around the US and globally—BIKE MS, WALK MS, LITTLE BLACK DRESS WINE TASTINGS.

I may not see the cure in my lifetime, but, while I can, I intend to be a motivator and advocate for those who are stricken with this disease. I am a 17 year warrior.

More Common Than Not ~ by Grace Augustine

Actress, Teri Garr
Actress, Jamie-Lynn Sigler
Stock Car Driver, Trevor Bayne
News Anchor, Neil Cavuto
Scottish Playwright, Roger MacDougall
Author, M.J. Hyland
Canadian Meteorologist, Janice Dean
Lawyer and Civil Right Leader, Barbara Jordan,  Actor, David L. Lander,  Country Music Artist, Clay Walker,  Actress, Annette Funicello,  Actor, Jack Osborne, Wife of Senator, Ann Romney,  Actress, Selma Blair, Author, Grace Augustine

     This list is just a beginning to the one million people who have been diagnosed with Multiple Sclerosis, an autoimmune disorder that affects the central nervous system.
     Multiple Sclerosis shows no favoritism. It doesn't care that you are rich or poor, it doesn't care that you are famous or a regular Joe/Jane, it doesn't care about your social status. It attacks when least expected, sometimes with barely noticeable repeating symptoms, sometimes with symptoms that send you to the emergency room.
     March is National Multiple Sclerosis Awareness Month and today is the beginning of National Multiple Sclerosis Week--March 10th-16th.  In this first of two posts this month, I want to address the clinical aspect of this disease with hopes that it will bring understanding to those who know little about it or who confuse it with Muscular Dystrophy.

     Multiple Sclerosis...the name means "many lesions." I see you scratching your head and wondering what I mean when I say lesions. To explain that, I must explain what MS, Multiple Sclerosis, does to the central nervous system.
     Our bodies are equipped with a computer...our brain. From our brain stems our spinal cord and our Central Nervous System (CNS) Within that spinal cord is a colorless liquid that surrounds our brains and our nervous system and protects it. The fluid feeds nutrients to our brain and spine and also removes waste as well as protects our brain against injury.
     From our spinal cord millions of nerves stretch throughout our bodies. The nerves are covered by myelin, another protective mechanism. Think of your nerves as a copper wire with a plastic coating (myelin) that may help you visualize my next statement.
     In people who have been diagnosed with MS, their bodies produce rogue T-Cells and B-Cells...cells that are instrumental in controlling inflammation. These rogue cells attack the myelin...the plastic coating on the nerves...seeing it as a foreign matter that it needs to rid from the body. As these cells eat away this protective covering, nerves are exposed, and instructions from the brain to these nerves are interrupted. The nerves now have lesions on them. These lesions are located on the spinal cord and in both the white and gray matter of the brain.

     Because of the nerve damage done by these rogue cells, many things go wrong. Eyesight is affected, or it may be speech, or it may be a numbness and tingling in extremities. It could be cognitive, it could be a number of things that prevent our bodies from working properly. The biggest thing is fatigue.
     Well, can't you rest? You ask.  MS fatigue is different than what the normal person experiences. It is a brutal, all encompassing weariness that prevents you from moving. You have zero energy, you cannot think, you have fog brain, and so much more.
     What can be done to treat the lesions?  At this point, not much. It is all speculative and all preventive. The disease modifying drugs that are available are many, but physicians still have no clue when or if they do anything to curb the progression of MS.
     What is the process for confirming an MS diagnosis?
     1. See your physician and discuss frankly all of your symptoms, regardless of how minor you think they may be. It will give a better picture of what is happening in your body. You will then be sent to a neurologist, a specialist dealing with the Central Nervous System and diseases that affect it.
     2.  Your neurologist will order an MRI with contrast to determine if and where lesions are located on your spinal cord and brain.
      3.  Some neurologists may order a lumbar puncture--a procedure that removes spinal fluid from the spinal cord to check for Oligoclonal Banding. Following the procedure, you will need to lay flat for a few hours until the fluid returns to normal pressure.
     4.  After all of the testing has been completed, you will meet with your neurologist for the results and a plan for care will be discussed.  Several options will be discussed and it will all depend on how the MS presents itself in your body.
     The one thing I want to impress upon you, if you are reading this and either have been diagnosed or suspect you may have MS...you are not alone. Do not be afraid to ask for help. I am more than happy to visit with any who need an ear.
     For me, I was diagnosed in 2003 at Mayo Clinic in Rochester, Minnesota by five different neurologists who each examined me then collectively met to compare their findings.
     I wrote a book, So You have MS. Now What? about my personal journey with MS. It contains a lot of practical and clinical information. You can find out more about it on my member page by clicking HERE.
    In my next post, I will address what YOU can do to help find a cure to this autoimmune disease.